Alkohol in der Schwangerschaft
Herausgegeben von Renate L. Bergmann, Hans-Ludwig Spohr & Joachim W. Dudenhausen
München, 2006
ISBN: 978-3-89935-221-1
Erhältlich über die Stiftung für das behinderte Kind und über Amazon.
Alcohol, pregnancy and the developing child
Edited by Hans-Ludwig Spohr & Hans-Christoph Steinhausen
This authoritative new publication is the first to review comprehenseively the important relationship between maternal alcohol abuse during pregnancy and the resulting damage to the child in utero, and the results of this damage during the development of affected children. It includes important contributions by leading and internationally acclaimed clinicians and researchers. The first part of the book discusses clinical issues of alcohol teratogenicity, the clinical picture of fetal alcohol syndrome, and the epidemiology of maternal alcohol abuse and the development outcome of the children. The second part addresses pathogenesis and neuropathology, whilst the third reviews developmental issues in the growing child. The final part evaluates approaches to rehabilitation and intervention, and reviews social and public health issues. This comprehensive account will be invaluable for gynecologists, obstetricians, midwives, neonatologists and pediatricians, and for child and adolescent psychiatrists and psychologists.Cambridge, 1996
ISBN: 0 521 56426 3
Message in a Bottle – The Making of Fetal Alcohol Syndrome
By Janet Golden A generation has passed since a physician first noticed that women who drank heavily while pregnant gave birth to underweight infants with telltale physical characteristics. Women whose own mothers enjoyed martinis while pregnant now lost sleep over a bowl of rum raisin ice cream. In "Message in a Bottle", Janet Golden charts the course of Fetal Alcohol Syndrome through the courts, media, medical establishment, and public imagination.
Harvard, 2005
ISBN: 978-067402237-9
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Für Pflegeeltern, Adoptiveltern, leibliche Eltern und für Fachkräfte:
The Broken Cord
by Michael Dorris
When Michael Dorris, 26, single, working on his doctorate, and part Indian himself, applied to adopt an Indian child, his request was speedily granted. He knew that his new three-year-old son, Adam, was badly developmentally disabled; but he believed in the power of nurture and love. This is the heartrending story, full of compassion and rage, of how his son grew up mentally retarded, a victim of Fetal Alcohol Syndrome whom no amount of love could make whole. The volume includes a short account of his own life by the 20-year-old Adam, and a foreword by Dorris' wife, the writer Louise Erdrich.
ISBN: 0-06-091682-6
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Fantastic Antone Succeeds! – Experiences in Educating Children With Fetal Alcohol Syndrome
Edited by Judith Kleinfeld & Siobhan Wescott
Fantastic Antone Succeeds describes in concrete, specific ways how to educate children with fetal alcohol syndrome or fetal alcohol effects (FAS/FAE). It communicates an optimistic message that is both true and appealing: with the right education, delivered by a nurturing individual in the home or in the school, many alcohol-affected children thrive.The book consists of separate chapters written in a popular and accessible style by psychologists, teachers, and birth and adoptive parents of alcohol-affected children. Many chapters are personal stories with emotional power. A birth mother, for example, tells of her anguish when she realizes that she has recovered from her own alcoholism but her daughter cannot. This mother describes how she dealt with her grief, how she told her daughter the truth, her daughter's relief at finally understanding what was wrong, and how they both developed ways of overcoming her daughter's learning problems.
Other chapters describe how experienced teachers have learned to organize classrooms where alcohol-affected children can thrive and how therapists have learned to work with parents. One chapter summarizes medical knowledge of FAS/FAE and offers information useful for understanding a child's learning and behavioral problems and devising educational approaches. The book includes lists of important resources, organizations to contact, and descriptions of effective classroom practices for teachers.
Alaska, 1993
ISBN: 978-0912006659
Erhältlich z.B. bei Amazon.
Fantastic Antone grows up – Adolescents and Adults with Fetal Alcohol Syndrome
Edited by Judith Kleinfel, Barbara Morse and Siobhan Wescott
Fantastic Antone grows up is a field guide to life with an adolescent or young adult with fetal alcohol syndrome or effects. Under the best of circumstances, adolescence is a trying time for young people and their families. The budding adult seeks independence and autonomy while the resistant child within longs for protection and structure; questions about sexuality and work, social commitments, and solitary accomplishments loom large and can create a family battlefield. For the challenged and challenging young people with FAS, the circumstances as they begin maturing are never the best.
In this sequel to Fantastic Antone Succeeds, young people with FAS and their caregivers report on their experiences coping with the problems of adolescence and young adulthood. Again the editors and authors have concentrated on the wisdom of practice, as they candidly convey which techniques worked and which did not during the difficult passages of the teenage years and beyond.
Alaska, 2000
ISBN: 978-1-889963-11-2
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Für betroffene Kinder und Jugendliche, deren Eltern und für Fachkräfte:
The best I can be – Living with Fetal Alcohol Syndrome or Effects
by Liz and Jodee Kulp
„I am adopted and my mom died so no one will ever know when or how much or how often my mom drank. I just know it affected me and I have to live with it.”
“When I get into a problem, it is hard for me to get out of the problem. I don’t know how I got there and I don’t know what to do.”
“Some of my friends say I act stupid and say really bad things about me. It makes me feel mad.”
“I want work with hair or be singer or be an actress or clothes designer. I know it will take a lot of work to do that. I probably can not be everything but I can be the best I can be.”
Eine Jugendliche mit FASD schreibt über ihr Leben. Unterstützt und kommentiert von ihrer Adoptivmutter.
ISBN: 978-0-9637072-3-9
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Die Himmelsrutsche – Geschichten von verlassenen Kindern, die neue Eltern suchen
Von Monika Wiedemann-Kaiser
Kims Mama trinkt in der Schwangerschaft Alkohol, weshalb es im Bauch bitter und scharf schmeckt, Pauls Eltern trennen sich und alleine ist seine Mutter überfordert, die Mama der rothaarigen Luise stirbt, weil sie zu viel Bier, Schnaps und Tabletten geschluckt hat, George wird vom neuen Freund seiner Mutter sexuell missbraucht und die Mama von Hannah, die einmal Prinzessin werden will, nimmt Drogen.
Kindgerecht und ehrlich erzählt Monika Wiedemann-Kaiser in ihrem Buch „Die Himmelsrutsche“, warum Kinder manchmal nicht bei ihren leiblichen Eltern bleiben können und eine neue Familie brauchen. Sie erklärt, dass es manchmal auch länger dauert, bis eine passende Familie gefunden ist und man erstmal ein vorläufiges Zuhause braucht.
In den Geschichten finden die Kinder mithilfe von Elfen, Zwergen, Kobolden und der Klingel für verlassene Kinder, die man nur nachts um 12 Uhr 12 drücken kann, doch noch zu ihrem Glück. Und so kommt Kim zu Elke und Manfred mit dem runden Bauch, Paul kommt zu Ute, Dietrich und seiner Pflegeschwester Sarah, Luise kommt zu Friederike, die sich schon immer ein Mädchen mit roten Haaren gewünscht hat, George kommt zu Vladimir und Angelika und Hannah kommt zu ihrem Onkel Malte und seinem Freund Micha mit den lustigen Tatoos und wird doch noch eine Prinzessin. Im zweiten Teil des Buches bekommen Erwachsene und Eltern Hintergrundinformationen zu den fünf (auf realen Biografien) beruhenden Geschichten sowie Hinweise zur Biografiearbeit mit Pflege-, Adoptiv- oder Heimkindern.
Münster, 2010
ISBN: 978-3-86991-096-3
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